Doctors dubbed her “bionic” while her mother says she is “made of steel.”
For seven-year-old Olivia Farnsworth has real life super powers.
The Huddersfield youngster feels no pain, doesn’t get tired and is never hungry.
Olivia has a rare chromosome disorder that has left doctors and her family amazed.
It is thought she could be the only person in the world to exhibit the three symptoms together.
Her truly unique qualities have seen her run over by a car and walk away virtually uninjured.
She once went three days and nights without sleep and her mum says she has no interest in food.
When she was diagnosed, the consultant geneticist at Leeds Teaching Hospitals admitted she had never seen the disorder before in her career.
Mum, Niki, 32, said it was so rare it didn’t even have a name.
Little Olivia’s condition is described as chromosome 6 deletion but the mix of super-human abilities has never been reported before.
“She’s got no sense of danger,” said Niki, a single mum-of-five.
“She got run over and dragged down the street by a car and she didn’t complain.
“She was dragged about ten car lengths down the road. It was horrendous, I don’t think it’s something I will ever get over.
“I was screaming and all my other children were screaming as she ran out.
“But Olivia was just like, ‘What’s going on?’. She just got up and started walking back to me.
“The hospital said she’s bionic.
“Because of the impact she should have had severe injuries. She had a tyre mark on her chest.
“But her only injuries were she had no skin on her toe or her hip.
“The doctors were busy giving her CT scans, x-rays, trying to find injuries but there was nothing. She was really lucky.
“The doctors think what saved her from injury was she didn’t tense up.”
Niki said the signs of Olivia’s unique condition started when she was just a few months old. But she said her little girl’s toughness was not the blessing some may think.
“As a baby I always said she was made of steel as she never cried,” said Niki. “I never thought she’d feel no pain, it was just a joke.
“From being nine months old that’s when I realised something wasn’t right as she stopped napping during the day.
“She had bad colic and her hair didn’t grow. She had no hair until she was about four-and-a-half. People called her a boy all the time.
“She became a really fussy eater and would have nothing but milk shakes. At the moment it’s chicken noodles.
“She lived on butter sandwiches for about a year.
“She doesn’t feel hunger so I can’t threaten her like other children by saying if you don’t eat that you’ll not get this as she isn’t bothered.
“She also once fell badly and ripped her lip off and didn’t say anything. She had to have major plastic surgery to correct it.”
Olivia’s third “super power” is she never feels tired.
“She once went three consecutive days and nights with no sleep,” said Niki. “As a single mum of five it’s really hard.
“She’s never tired. We have to give her medication to get her to sleep.”
Another struggle for Niki is her daughter has been prone to occasional outbursts and violence.
“She’s head-butted me, punched and kicked me and can have outbursts of swearing which can be embarrassing if we’re out in public,” said Niki.
“It happened in a park the other week and people were wondering what’s going on.
“They don’t know what’s wrong.
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“This is why I want to raise awareness or chromosome 6 problems.
“To look at Olivia you don’t know anything’s wrong with her. I want people to know and to stop judging.”
Despite Olivia’s perceived toughness, Niki said she was the most loving of her children.
“She’ll be the first to share her sweets with you,” she said. “She’s got the best personality. She’s just crazy, but in a good way.
“Everybody laughs because she’s so wild and extreme. She says let’s jump off here and all the other children are like, ‘That’s way too high!’.”
Niki is now planning to raise money in aid of research into the rare disorder through a skydive and by hosting a charity tattoo-athon, asking people to get the chromosome 6 logo tattooed on their bodies.
And she paid tribute to Olivia’s brothers and sisters Ella-Mae, 12; Bradlee, 10; Archie, 6 and Poppy, 4.
“It’s scary,” she said. “There’s nothing worse as a parent than to be told there’s something wrong with your child but then told we can’t tell you anything about it.
“There’s no information out there whatsoever and there’s no funding for any research.
“Its difficult but her brothers and sisters do loads for her. They help her with so much, they go through a lot.”
Niki and Olivia have been supported by chromosome disorder support group Unique.
Chief executive Beverly Searle said Olivia was the only case they had heard of in the world.
Dr Searle, a former research biologist, said no-one knew if there was another case like Olivia but she was certainly “extremely rare.”
Of 15,000 chromosome disorder cases on their worldwide database – just 100 are the “6p” deletion that Olivia has.
Dr Searle said none of those 100 have the same characteristics as Olivia.
“There may not be anybody out there the same as Olivia,” she said.
“You can’t treat chromosome disorders but what we can do is alleviate the symptoms.
“We try to find matches and provide information for families, which can be great for friendship and local support.”
To support Niki’s fundraising find her on Facebook by searching for ‘Niki Trepak’.
To learn more about chromosome disorders visit Unique’s website: www.rarechromo.org
Factfile: What is a chromosome disorder?
People with chromosome disorders suffered missing or re-arranged genetic material during conception.
Common disorders include Downs Syndrome.
There are dozens of more rare disorders which can cause developmental problems.
About one in 200 babies is born with a rare chromosome disorder but each one can be very different, making them exceptionally rare.
Some are so rare that they are genuinely unique