NEWSOME schoolgirl Sophie Edwards is keeping a heart-rending diary of her feelings as she waits for a bone marrow donor .
The seven-year-old Newsome girl writes “I will die if I don’t get a donor”, which brought tears to the eyes of her mum Emma.
Mrs Edwards said: “Even though she’s only seven she knows what’s happening.
“Some of the stuff she writes has me in tears whenever I read it.
“We do all talk as a family about what she’s going through, but that diary is her own words about how she is feeling.
“I think it is helping her to write about her feelings.”
Mrs Edwards and husband Andrew appealed for a bone marrow donor earlier this month after being told it was Sophie’s only hope.
They are now backing the Examiner campaign to raise more awareness of bone marrow donations.
Mrs Edwards added: “A lot of people don’t realise that all they need to do to save someone’s life is have a blood test.
“My younger brother went along and he was asking what was involved because before then he didn’t know anything about it.
“If people knew more about the process then it would help them make a decision.
“Sophie needs the same tests every two weeks, she’s had that many I can’t remember them all.
“So putting it into perspective, people only need to do it once or twice in their lifetime.”
Little Sophie was diagnosed with leukaemia in February which became complicated when she was told she had the rare Philadelphia syndrome, which affects about eight children a year in the UK.
Sophie, a pupil at Stile Common Infant School, is currently undergoing intensive chemotherapy at home and at hospital.
But a bone marrow transplant is her only hope of beating the disease for good.
So a desperate search is now under way to find a match.
Mrs Edwards added: “If a donor is found it will mean so much to our family, I could never really put it into words.
“A donor would be the key to her life when all is said and done.
“Whoever is a match would be saving the life of a little girl who has so much ahead of her.
“I realise they don’t always work, but it would give her and others a chance which is what we are asking for.”
The family organised a clinic in Newsome earlier this month which was attended by many members of the community.
But they said many willing Polish people were turned away because they had not been in the country for more than three years.
“It’s heartbreaking that all these folk were so willing to do it and there are restrictions,” Mrs Edwards added.
“This is not just for Sophie but many other people like her.
“Until it happens to you, you don’t realise how many people need a transplant.”
THE video on Examiner reporter Adrian Sudbury meeting Prime Minister Gordon Brown is now online.
Adrian met the Prime Minister in the House of Commons on Wednesday in a bid to take his bone marrow campaign to the top of the government.
And he received the support of the leader, who said he had read some of his blog online.
To watch the video visit www.examiner.co.uk