Friends and family of a baby with a rare genetic disorder have organised a flurry of fundraisers for charity.
One-year-old Kasper McArthur was born with chromosome deletion syndrome which means he has learning difficulties and delayed development.
The Brighouse baby has fluid on his brain, visual delay and slight hearing loss in his left ear which may deteriorate.
Because of the delay in the development of his muscles Kasper, who attends the Princess Royal Community Health Centre near Greenhead Park, is unable to sit up unaided.
Now his relatives and friends have organised a medley of events to raise £10,000 for the Child Development Unit at Calderdale Royal Hospital, Halifax.
They will holding a family fun day at Brighouse Sports Club, Bradford Road, on November 29, followed by a Halloween fancy dress party at The Richard Oastler, Bethel Street, on November 31.
There will also be raffles at The Old Ship Inn, Bethel Street, on October 28 and 29 and The Richard Oastler, on October 30.
And on October 31, friends and relatives – including Kasper’s dad Jason – will be taking part in skydives dressed as superheroes.
Kasper’s mum Mandy, 39, said: “He’s quite jolly and he doesn’t cry but he can’t sit up on his own and he’s still being bottle fed. I can’t bathe him on my own.
“We’ll have to wait until he’s older to see how much of a disability he will have.
“I’m a full-time carer and his dad spends at lot of time with him.
“Because he’s 13 months you’d think he would be up and about and he’s not. It’s difficult when you see your granddaughter doing things that he should be doing.”
Mum-of-five and grandmother Mandy said: “The skydive was Jason’s idea. It’s gone from a skydive to a bit mad with all the activities.”
Chromosomes contain the DNA of a living organism.
Having missing, partially missing or too many chromosomes causes mutations which lead to varying levels of disability and in severe cases, death.
